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I have a very very rare disease - My eyes hurt when they're ..

I have a very very rare disease - My eyes hurt when they're "overstimulated" with light.
It's complex to explain, but that's the reason lights are so "dim" when I'm making a video or taking pictures.

I'm hypersensitive to strong lights, and particularly rapidly changing lights - my eyes hurt as if I had a migraine!

I have suffered from it since I was 17, and doctors are still investigating the issue, although at the time I have received a dozen of different treatments!

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